October 15, 2025

Thalassaemia Education and Screening Build Prevention Awareness in Bandung

YIIM and its partners reached 160 young people through thalassaemia education, digital outreach, and screening, helping participants understand carrier status and prevention.

Program Information

Program Name

Zero Thalassaemia Seminar and Screening

Date

October 4, 2025

Pathway

SDGs

Collaborators

Participants

160 young participants attended the education program, and 142 of them completed thalassaemia screening.

Location

Bandung, West Java, Indonesia

Key Activities

Digital awareness campaign; seminar on inherited blood disorders, carrier status, treatment realities, and prevention; participant discussion; and thalassaemia screening for 142 young people.

Expected Outcome

Improved knowledge of thalassaemia and inheritance; greater awareness of carrier screening and prevention; increased readiness among young adults to make informed health decisions; and wider peer-to-peer dissemination of prevention information.

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Young participants attend thalassaemia education and screening in Bandung

On 4 October 2025, Yayasan Inspirasi Indonesia Membangun (YIIM) and PT Insight Investments Management collaborated with Yayasan Thalassaemia Indonesia to hold a thalassaemia seminar and screening program in Bandung.

Thalassaemia is an inherited blood disorder passed through parents or family members who carry the trait. Because the condition currently has no cure, prevention through knowledge and early screening is especially important. Public understanding in Indonesia, however, remains limited.

West Java had the country’s highest provincial burden, with 4,255 people living with thalassaemia, and Bandung recorded the highest number at city or regency level. The program therefore focused specifically on young people in Bandung under the theme Creating a Zero-Thalassaemia Future.

The prevention campaign combined digital education, a seminar, and blood screening. A total of 160 young people attended, and 142 completed screening.

Before the activity, most participants had little or no knowledge of thalassaemia. After the seminar, they better understood the medical information, inheritance risks, handling, and prevention. One participant said the event explained what thalassaemia is and how it can be managed and prevented. Another said the screening was particularly valuable for members of Generation Z approaching marriage age because it made them more aware of carrier status and future family decisions.

Through the initiative, YIIM, Insight, and Yayasan Thalassaemia Indonesia sought to equip young people to share accurate information with their peers and help prevent new cases in future generations.

Salam Inspirasi!